Ohtahara Syndrome


You'll find information about Ohtahara Syndrome, seizure recognition and the testing involved. 

Helpful links and suggestions from Joey's mommy and daddy

Resources Available to Your Family

When we first learned of Joey's condition we were unaware of the help he was entitled to and the assistance we could get. I've put together a list of resources we utilized to help us with everyday life, decision making and support. 


Meet other families who've had to face epilepsy how they found support.